I have had doctors trying to get me on CPAP for ages. Lots of doctors, PCP, Rheumatologist, Neurologist, Psychiatrist, Physiatrist, Accupuncture/Internal Medicine! Too many. And many attempts have been made. I was put on a face mask, couldn’t sleep more than 3 hours. At the 3 hour mark the seal would be lost not to be regained again until the next night. Then the nose mask, same thing, though not necessarily 3 hours. Then a full face mask, that was worse.
This latest go round with the neurologist was different though. I have gotten to a point that I forget everything. I make an appointment and don’t remember I did it. I go to a room and I don’t know why I am there, now that isn’t so bad. I pick up a pen and I don’t know what I had intended to write. There are things I can’t remember for 5 seconds. No exaggerating. I am honestly thinking of getting a journal to make notes of what I have done and what I need to do throughout the day. And it is different in another way. I am tired, extremely tired. The gravity wells are almost constantly there. But I can’t always sleep. So I just muddle by hoping I don’t forget my own name.
So I believe them, I need to be on the CPAP. I remember when I was first tested they said that while I don’t stop breathing as often as many, my oxygen level drops so low that if I were in the hospital I would be put on a ventilator! So something has to give.
Today I got a message back they do have a new option, it’s called the bleep. Funny name I thought. So I went online and looked it up. I am afraid to, but I almost hope with this thing. No straps or mask to get out of place and put me in a tornado, talk about a horrible way to wake up…especially without munchkins and a yellow brick road. So maybe, just maybe I can get this taken care of. Maybe if I can get some decent sleep things will really get better.
Oh please Jehovah, let things get better.